Adalia Rose Williams, a teenage YouTuber living with Hutchinson-Gilford progeria syndrome, has died. She was 15 years old.
“January 12, 2022 at 7 p.m. Adalia Rose Williams was liberated from this world,” a post began on both her Instagram and Facebook accounts. “She quietly came in and quietly left, but her life was far from it. She touched MILLIONS of people and left the greatest impression on everyone who knew her.”
“She is no longer in pain and is now dancing away to all the music she loves,” the post continued. “I really wish this wasn’t our reality, but unfortunately it is.”
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“We would like to thank everyone who loved and supported her. Thank you to all her doctors and nurses who have worked for YEARS to keep her healthy. The family would now like to mourn this huge loss in private,” the statement concluded.
According to the National Organization of Rare Disorders (NORD), “Progeria, or Hutchinson-Gilford progeria syndrome (HGPS), is a rare, fatal, genetic disorder of childhood with prominent features resembling premature aging.” The organization notes that there are only about 400 children in the world living with progeria at any given time.
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Thousands of fans and followers expressed their condolences to Williams’ family, including designer Michael Costello, who designed a pair of tailored dresses for the teen to celebrate her 13th birthday in 2019.
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“My heart is broken,” Costello captioned a collection of videos of the fashion-loving teen on Instagram. “I am short of words and can’t stop crying. Adalia was so special to everyone she met. She was an angel.”
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Costello added: “Despite the cards she got, she had the most positive attitude and big dreams to help everyone around her. I love you so much Adalia… Words cannot describe how much you have changed my life. I will Miss you dear friend, and I promise to cherish all the wonderful memories we had together.”
“It was the cutest. She was so cute and so sweet,” Costello told PEOPLE of first meeting Williams in December 2019.
Williams was known for her vivacious and spunky personality, love of all things fashion, makeup tutorials and other YouTube videos showing her everyday life.
She had a large following on all her social media platforms, with nearly three million subscribers on YouTube and more than 380,000 followers on Instagram, making a lasting impression on all the lives she touched.